My mother greatly appreciated having a loving husband and myself, her only child, to take care of her in her home with hospice care coming in once a day for about an hour. She went through two prior treatments for brain cancer over the prior 10 years and developed cancer elsewhere. Chemo would not have helped as her conditioned worsened daily and she died within 2 weeks of her first oncologist appointment. She did not want to go through chemo a 3rd time and did not want to go to a hospital again. She died after about 10 days of hospice care.
My father appreciated me living with him for 4 months last year to care for him. Unfortunately after 4 months his dementia worsened and he longer trusted me or anyone else to care for him. He thought he heard and saw strangers in the house and that they are stealing his money. He never wanted to go to any long term care facility but I could not care for him as he needed medications to keep him from becoming physical with even the staff. He died within 4 months of being put in long term memory unit care. He had been doing okay for years prior to this even though Parkinson's was slowly progressing.
I hate to think what happens to those who have no one to help them navigate the healthcare system when they are frail physically or mentally or both. I hate to think of what happens with those without the insurance and financial means to get the care they need.
I am not sure what I will want or do when I reach the point of greatly diminished quality of life. The last few weeks were terrible for my mother and I lost my father 4 months before he died due to the dementia and the effects of the medications used to prevent him from becoming verbally and physically aggressive with staff. Long term care facilities will have violent residents removed if behavior issues are not controlled with medication. Good luck finding a psychiatric hospital that will accept someone. One that I contacted was full and another would not accept him based on report from local hospital intensive care unit. Local hospital had to but him in an intensive care bed just so they could keep him controlled and safe and their staff safe. I had to get my father in psych hospital to get on meds before any memory care facility would accept him. He spent about a month in the only psychiatric hospital in the state that would accept him. He almost never swore before dementia and he was never physical with anyone before his dementia worsened. I was shocked when I saw my father after a month in the psych hospital. He was about 230 lbs 3 months before I moved in. He was 195 when I was staying with him. He was 180 or less after a month in the psych hospital. Looking at his legs and chest after death I would guess he weighed 140 to 150 lbs.
You better have a plan on what is going to be done to you once your quality of life worsens and you are no longer able to care for yourself. If you do not have a heathy and loving spouse or children then who will help you. Others may just walk out on you.