Keep it going bro.
Keep it going bro.
??
Things are most definitely moving in the right direction, well done!
Ghost of Igloi wrote:
Get the scan, and ease your mind. You have a case of scanxiety.
BrokenLungs wrote:
I agree with Iggy, get that scan as soon as possible.
Scan scheduled for tomorrow. Results soon.
Scheduling screw-up. Did scans and bloodwork today, but no results for 2 1/2 weeks :-/
See if your hospital has an online portal. The scans are read almost immediately.
Just finished today's run. That makes 7 days straight! Running every day for a week ... big breakthrough.
Do you have mychart? (Omg I love mychart)
Its almost criminal that they'd make you wait that long to do results of scans and blood work.
Ghost of Igloi wrote:
See if your hospital has an online portal. The scans are read almost immediately.
biggest question1 wrote:
Do you have mychart? (Omg I love mychart)
Maybe they have something like that; I don't remember. There have been maybe 8 or 10 facilities involved in my cancer stuff -- I've lost track of who has what. I'll call on Monday.
biggest question1 wrote:
Its almost criminal that they'd make you wait that long to do results of scans and blood work.
Yeah, that long of a wait can definitely put you on pins & needles. Last time I did scans & bloodwork, the oncologist called me to ask if he could bump my appt a week, since he was overwhelmed with other urgent cancer patients at the time and my results were fine. So that time, I was glad to wait!
One thing that I have noticed with several facilities is that the cancer care is decent, but the scheduling, paperwork, and systems not directly involved in in-person patient care can be in a disarray and difficult to navigate. Anybody else experience this?
Sub-8 Mile wrote:
biggest question1 wrote:
Its almost criminal that they'd make you wait that long to do results of scans and blood work.
Yeah, that long of a wait can definitely put you on pins & needles. Last time I did scans & bloodwork, the oncologist called me to ask if he could bump my appt a week, since he was overwhelmed with other urgent cancer patients at the time and my results were fine. So that time, I was glad to wait!
One thing that I have noticed with several facilities is that the cancer care is decent, but the scheduling, paperwork, and systems not directly involved in in-person patient care can be in a disarray and difficult to navigate. Anybody else experience this?
A couple of times proposed care deviated from plan, and schedules were not followed. I stayed on my caregivers, and was not bashful with questions or challenges. I realized early on it was up to me insure things happened. I feel for those that don’t have the education, sophistication, or gumption to advocate for themself. I can see how people get lost in the system.
I got all my treatment at one cancer center but have a second, larger research based center I work with too.
At my primary treatment center, I started working with the social worker there right away.
Navigating the cancer world, with paperwork, payments, appointments, your charts, multiple doctors, along with your own communication style and stressors is a lot.
My social worker has helped so much. She has helped make sure my files make it to the other doctors, gotten me referrals, made sure I had the right paperwork etc.
It took a lot of stress off I think.
I am sure having someone to lean on is necessary. I was fortunate in that one of my running friends who is an endocrinologist diagnosed my condition. He was also willing to answer my calls and texts as I took my journey.
Thanks so much for this thread, I am often moved while reading your updates. I hope you continue to improve your fitness and stay in good health.
In NL, Miranda Boonstra [2h27 marathoner, physical therapist and exercise physiologist] is helping people get fit after cancer by means of running:
BZ wrote:
In NL, Miranda Boonstra [2h27 marathoner, physical therapist and exercise physiologist] is helping people get fit after cancer by means of running:
https://www.mirandaboonstra.nl/rcvryrun/
Interesting stuff. I believe that appropriately moderate activity can help during treatment. So tricky to figure out what is "appropriate" and "moderate" when under the duress of cancer/chemo/radiation.
I mean, it's been very difficult for me, post-treatment. I can't imagine trying to direct someone on how to exercise DURING treatment.
Sub-8 Mile wrote:
Ghost of Igloi wrote:
See if your hospital has an online portal. The scans are read almost immediately.
biggest question1 wrote:
Do you have mychart? (Omg I love mychart)
Maybe they have something like that; I don't remember. There have been maybe 8 or 10 facilities involved in my cancer stuff -- I've lost track of who has what. I'll call on Monday.
I was able to see my results on the online portal. Everything looks fine. Whew!
BZ wrote:
Thanks so much for this thread, I am often moved while reading your updates. I hope you continue to improve your fitness and stay in good health.
In NL, Miranda Boonstra [2h27 marathoner, physical therapist and exercise physiologist] is helping people get fit after cancer by means of running:
https://www.mirandaboonstra.nl/rcvryrun/
Marathon great Ken Martin is doing the same. The theory is to build endurance to prepare for treatment, and then to aid recovery.
Sub-8 Mile wrote:
Sub-8 Mile wrote:
Maybe they have something like that; I don't remember. There have been maybe 8 or 10 facilities involved in my cancer stuff -- I've lost track of who has what. I'll call on Monday.
I was able to see my results on the online portal. Everything looks fine. Whew!
Good news. Move on to the next hurdle.
Ghost of Igloi wrote:
Move on to the next hurdle.
Well said, Igy. Here's my training log from last week:
Mon 28 Sept - Grass athletic fields. Planned 2 mi. Ran 1.5 mi @ 13:29. Legs exhausted; continuing would have turned into a harder workout than planned.
Tue 29 Sept - Felt better today. 2 mi @ 18:06 on grass athletic fields. Then, on turf field (barefoot shoes): 8 x 100m strides with 1 min standing rest @ 24, 23, 23, 22, 21, 20, 20, 19. Smooth, didn't push hard. Felt weird getting a little turnover for the first time in years.
Wed 30 Sept - Grass athletic fields. 2 mi @ 17:14. Legs tired, but not too tired. Just feeling it a bit, from yesterday.
Thu 1 Oct - Grass athletic fields. 2 mi @ 16:39. Even paced, but not an even effort. Went thru 1 mi @ 8:20, then felt like I was working comparatively harder for it. HR was only 150-155 though, compared to 165+ a week and a half ago (running 16:30 felt like pushing more the whole time). This felt easier.
Fri 2 Oct - Grass athletic fields. 2 mi @ 16:51. Legs felt better today.
Sat 3 Oct - Grass athletic fields. 2 mi @ 16:37. Legs felt ok. HR 150-155.
Sun 4 Oct - No running, legs tired (not trashed though), esp calves & Achilles. Taking a day off to recover. Stretching, core, and upper body only.
Volume for the week: 12 miles!!
A few weeks ago, I had planned to alternate 2-mi runs with lunges/calf raises etc, every other day. But it felt right to try running every day instead, and it seems to be working well so far.
You’re showing some leg speed.