27 years old. Diagnosed with rare form of lung cancer

There are severe negative long time sideeffects of chemo, rads and immunotherapy. As a cancer survivor I can personally testify. It is of interest to both pasients in therapy and in remission that such information reach a large public audience.

Ghost of Igloi wrote:

My comments are supportive of the OP and his condition.

That's not true and not right.

Encouraging people to take toxic and deadly treatments is not being supportive of them.

And disparaging factual information is not being supportive either, not of the OP and not of anyone else.

Medical BS` wrote:

Medical System Destruction wrote:

I lost my spouse, who was being treated for an autoimmune disease, to drug-induced organ failure. The horrors of seeing a family member die of iatrogenic damage caused by medical drugs will ruin you for life! ? So much for FDA-approved safe drugs! We trusted the doctors. We trusted the system.

You live in a fantasy world Ghost just because your cancer is in remission - you have no idea of the permanent damage that may have been caused by the toxic chemicals put into your body.

Thank you for sharing your experience. Without going into details, my spouse was also murdered by them.

Your anecdotal evidence is very dangerous to share to someone battling cancer. You know nothing about his condition, yet you tell him to forgo all treatment. That is the must asinine thing I've ever read.

Ultra or Die wrote:

Your anecdotal evidence is very dangerous to share to someone battling cancer. You know nothing about his condition, yet you tell him to forgo all treatment. That is the must asinine thing I've ever read.

Stop lying and don't be such a jerk.

People should be free to speak up and help each other, and to not be attacked for doing so.

Medical BS` wrote:

Ultra or Die wrote:

Your anecdotal evidence is very dangerous to share to someone battling cancer. You know nothing about his condition, yet you tell him to forgo all treatment. That is the must asinine thing I've ever read.

Stop lying and don't be such a jerk.

People should be free to speak up and help each other, and to not be attacked for doing so.

You're not trying to help anyone. You just want to spread your anti-science conspiracy theory bullsh*t. Stop polluting the OP's thread with your tinfoil hat ravings. Also, go f*ck yourself.

I appreciate both sides of the argument. Right now I'm holding out hope that I will be able to do targeted thereapy for the next several years and attack this in that manner. If I am not able to, then I don't think I have choice but to go through chemo, radiation, immunotherapy. I have 30-40% of my lung capacity right now by the Dr.'s estimates and I imagine if I don't attack this in some form or fashion that will only decrease. Obviously the side effects of these drugs are not ideal but neither is the disease and I feel that the best chance of living into my 30's, 40's and beyond is to recieve treatment and continuing to keep myself in good health. To those that have lost loved ones to cancer or cancer treatment, my condolences go towards you!

Im an oncology nurse practitioner. From what I could understand from your history it sounds like you were diagnosed with advanced lung cancer, likely non small cell, adenocarcinoma histology. Given you have lesions in both lungs this does unfortunately make you stage IV. Treatment in this setting is not curable but very treatable. As your doctor probably has discussed with you, your cancer may have a targetable mutation that include but not limited to EGGR, ALK, ROS1, and PDL1. These mutations are very rare. Combined they only make up about 20% of all lung cancers but if an individual has one then the treatment involves an oral therapy taken daily until disease progression. If you do not have one of these targetable mutations treatment can include surgery, radiation, or more conventional chemotherapy. In short being in better health makes you be able to tolerate treatment and can effect overall survival. In my practice I do have a younger gentlemen with advanced non small cell lung cancer with an EGGR mutation and has been on oral therapy with Tagrisso with minimal toxicities and good quality of life. He exercises daily and is very fit both muscularly as he lifts weight and cardiovascularly as he does some aerobic work well. Do as much as you can to tolerance and live life as normally as possible is the best advice I can give

Warm regards

Mr. Poop wrote:

You're not trying to help anyone. You just want to spread your anti-science conspiracy theory bullsh*t. Stop polluting the OP's thread with your tinfoil hat ravings. Also, go f*ck yourself.

Read the rest of the thread, you jerk, and stop trying to spread your big pharma propaganda.

People have their right to tell the truth and help people stay alive, which is what I and others are doing.

Having just read the Will thread, I’m ashamed of the nonsense going on in this thread. All of you fighting between each other when the OP is going through something so serious is disgusting.

Medical BS` wrote:

Mr. Poop wrote:

You're not trying to help anyone. You just want to spread your anti-science conspiracy theory bullsh*t. Stop polluting the OP's thread with your tinfoil hat ravings. Also, go f*ck yourself.

Read the rest of the thread, you jerk, and stop trying to spread your big pharma propaganda.

People have their right to tell the truth and help people stay alive, which is what I and others are doing.

I am so happy that you will be forever relegated to feverishly typing out the paranoid ejaculations of your conspiratorial fantasies on obscure internet messageboards, the digital equivalent of a lonely, obnoxious street corner preacher. You will never, ever have any influence in the medical or scientific community, and that should comfort us all.

Alternative treatments are very popular and some people swear by them and that chemo/radiation is not always the best or only way to treat cancer. It is conspiratorial but cancer is certainly a big industry for medicine and research. It's almost more lucrative not to find a cure.

A nice story but not really a realistic one.

Why did you go to the doctors in the first place?

OP and One NP,

I wish you the best. I am a PA in Onc and have am interested in Tagrisso and what long term studies show. I have seen two people present with stage IV non small cell LC and they are doing very well on Tagrisso. I am very hopeful

Best wishes

Onco Np wrote:

Im an oncology nurse practitioner. From what I could understand from your history it sounds like you were diagnosed with advanced lung cancer, likely non small cell, adenocarcinoma histology. Given you have lesions in both lungs this does unfortunately make you stage IV. Treatment in this setting is not curable but very treatable.

As I understand this recent article indeed there is an individual walking around in remission, and a dozen others with a hope of joining the party. And we are talking fda approved drugs...

There are many initiatives to develop better treatment. Surely a few of these can improve progress free survival.

I highly encourage you to read this inspiring story from someone who beat their lung cancer diagnosis, despite being labeled incurable. He offers his supplement routine at the end, absolutely crazy story.

Given the extreme anger in some posts, I must clarify: Patient was being treated by MD Anderson, I'm not giving medical advice, and most importantly, I shared this to give hope and share the incredible story of a positive cancer survivor.

Alternative Treatments wrote:

Alternative treatments are very popular and some people swear by them and that chemo/radiation is not always the best or only way to treat cancer. It is conspiratorial but cancer is certainly a big industry for medicine and research. It's almost more lucrative not to find a cure.

Not one person has ever been cured by any types of toxic medications and treatments. Almost all of the people soon die from conventional methods, not from any cancer, but from the toxic treatments. Many more people die from the toxic treatments, then if they'd never been treated in the first place.

Whether you believe this or not, one thing is certain. When they tell you that you're dying and there's very little hope for you, then you need to GET THE HECK OUT OF THERE, because your chances are always better at that point by doing something else, by cleansing your body and getting healthy, than by continuing to let them do what they've been doing to you.

I am a cancer survivor. I could feel the tumors with my hand. I was recommended standard of care which was chemotherapy and radiation. I followed the treatment program and as the days went by I could feel the tumors shrink untill they were gone.

Yes, there are very negative long lasting side effects. However, I am happy to have made the right choice for me. If ever again I will have to face cancer I will listen carefully to my oncologist.

Nothing to add beyond saying that the OP is the man that I would like, and aspire, to be. Anyone can show character when things are going well. The true tests of character come when the chips are down and things aren't going well. After reading the OP's posts, his character shines through. Thanks for being an inspiration this early in your journey.