Just had my fibular sesamoid removed on my right foot two weeks ago - stitches coming out this Friday! This surgery has been around seven years in the making:
I ran long distance track throughout high school and about a year in, a chronic pain in my foot while walking/running brought me to a specialist in 2007 who looked at x-rays and said based on scar tissue the bone had been broken into roughly three pieces for around a year; to this day I still have no idea how I managed that.
Fast forward through 3 months of a walking boot and around a year of on and off icing, rest, and various custom shoe inserts.
Because I had been unknowingly compensating for the pain by walking/running on the outside of my right foot, I tore a minor ligament on the outside of my right knee around 2008/2009. Kept running. Developed severe tendinitis in both feet during this time and suffered through ridiculous plantar fasciitis in my left foot, likely because of how off my gait was at this point.
By the end of high school I had stopped running and the pain subsided, I went on with my life. In college I picked up running again in my free time and abruptly overdid it and developed what my doctor jokingly called "raging tendinitis" in my right hip. After one session of PT where I was told that, "Some people just aren't built to be active," I figured I was on my own.
This led to a myriad of desperate measures to relieve the pain in my hip during passive activities like standing or sitting, let alone walking or running - excessive icing (I rigged up a little harness to hold a gel ice pack to my hip so I could still move around while at home) and at a different doctor's suggestion, 900mg of ibuprofen 3x a day for the better part of a summer, various taping techniques, supplements, dietary changes, chiropractic appointments, massage, etc. When it got to the point where walking became difficult I got a steroid injection in my hip, which worked well to relieve the pain for about a year. Still using ice, ibuprofen, shoe inserts at this point, and I had slowly given up on running.
When the steroid injection began to wear off, pain came back in my hip and foot all at once, and I went back to my original doctor from high school, who took one look at new x-rays and we decided the only option was to take the bone out since every conservative option had failed. After the surgery, he said the fibular sesamoid was 3x the size of the other one, cartilage all but gone and the bone was beginning to erode.
For me, the decision to get the surgery was a no brainer after so many years of chronic pain - at 21 years old, I'd prefer it if I could walk across a parking lot without stopping to lean on a stranger's car to give my screaming hip a break. As my doctor put it: even if the surgery didn't work, I'd be dealing with pain management for the rest of my life. In my case, a sesamoidectomy at least gives me a shot at less pain.
After the stitches come out this week, my goal is to slowly correct my gait and maybe after a year or so resume light running and work from there. And as soon as I can put decent pressure on my foot again there's always cycling, rock climbing (that might be wishful thinking at work, but we'll see), and horseback riding (no stirrups, of course) to stay active. I've also been told swimming is great to stay busy/in shape while I build up strength again, so maybe I'll try that out.
For anyone at the beginning stages of a sesamoid problem, my advice is to treat it like a broken limb. None of this "light activity" or "supportive shoe insert" nonsense. If you're serious about getting back in the game without chronic issues and pain, just stay off your foot and let it heal COMPLETELY, then slowly work back up to your normal levels of exercise. If you must use your injured foot, I found that a combination of ice, ibuprofen, and selective athletic taping of your foot along with a support shoe works best to manage pain. Best of luck to anyone who finds themselves with a sesamoid issue - it's a long road without much in the way of effective treatment.