Precious Roy wrote:
Serena Burla had a chunk of her leg removed when a sarcoma was found. She was able to skip radiation due to the radical nature of the surgery. She is back running now.
Thanks for that link. Mine was also a sarcoma, but, primarily distributed in nature. Hundreds of small tumors, not a single one. Ewing's presents similarly to what she had. Great to see someone not get taken out by sarcoma. Some are highly treatable. Others are extremely the opposite. For now, I am No Evidence of Disease, but, my creatinine levels rarely drop below 3 and I am anemia in 4 of the 5 different ways possible. Without ever getting over that, I don't know how I'll progress. I know honestly part of this is a medical conversation, but, will power is something there is no medicine for.