Anyone have an insider's knowledge of this disease? Are there particular things to know or anticipate or avoid, etc.?
Anyone have an insider's knowledge of this disease? Are there particular things to know or anticipate or avoid, etc.?
Very serious disease...it is cancer after all. Infections and bleeding problems are extremely common due to lack of platelets and non functional white blood cells. Very aggressive and many of the drugs often just delay the inevitable.
I do why do you need to know?
My wife has been diagnosed with it and begins chemo Tuesday
My wife has been diagnosed with it and begins chemo Tuesday
You should talk to a doctor and not us.
telecran wrote:
You should talk to a doctor and not us.
I have, but you knew that. I was looking for the type of advice that comes from hard experience, not lab results, but you knew that too.
Ampleforth wrote:
telecran wrote:You should talk to a doctor and not us.
I have, but you knew that. I was looking for the type of advice that comes from hard experience, not lab results, but you knew that too.
I had it 2 1/2 years ago.
Spent 5 months in hospital had 4 rounds of chemo and a big touch wood clear since and have not had to take any drugs since leaving hospital.
They give survival odds online and I thought it sounds terrible as it gives for 5 years rates. However, although there is no guaranteed cure the longer you are clear the less chance it has if coming back.
The main problem in the treatment is it completely knocks out your immune system for s couple of weeks each time. So expect a lot of infections. One thing is in hospital you get antibiotics intravenously and that makes a big difference in recovery.
With this in mind limit visitors as it is tiring and increases risk of infection.
You can look up recovery odds but it really depends on age and how the patient responds to treatment. The first round of treatment is important as you are looking to a good response ie remission from that. The remaining rounds of chemo is a bit like rinsing a glass to ensure its gone or they change the drugs to tackle it a different way.
If this is not 100% successful then there is the bone marrow transplant route. This is not as bad as it sounds as they are basically putting stem cells from the donor into your blood.
Chemo seems frightening but think if it as treatment to get better. You would never think of antibiotics in the same way. Apart from the side affects above its a bit like a hangover. If possible go for some short walks as as with a hangover it clears your head.
Emotionally I felt like I'd fallen off a cliff when I was diagnosed and thought my number was up. But after the first round of treatment things started turning around.
Good luck, if you want to talk further send me a message.
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