The hypothalamus-adrenal-pituitary (HPA) axis is also screwed up in this illness, if, indeed, that's what you have. I wouldn't seek an average doc's opinion. They don't know what to do besides prescribe anti-depressants and give obvious advice. Personally, I would stop lifting until you rule this out. You can get better in the first 3-4 years, but after that, remission is much more unlikely. Sleep, rest, eat very well.
SaveMeLetsRun wrote:
I went GF for about 6 weeks just to switch it up because I often am getting stomach GI pain after eating most things, and have been incredibly gassy over the past year (very, very irregular for me).
Eating GF generally made my stomach feel decent after eating, and I didn't get as much pain. I'm thinking about going back on that.
Did you get the bloodwork for Celiac? If not, you should do that...
hey OP
take a look at this thread regarding high iron but low ferritin.
http://www.healingwell.com/community/default.aspx?f=30&m=1610996
Skooled wrote:
hey OP
take a look at this thread regarding high iron but low ferritin.
http://www.healingwell.com/community/default.aspx?f=30&m=1610996
Thanks. I actually have seen that very thread before...
Hemolytic anemia...hmm. It would maybe make sense - also sounds absolutely horrible and unable to find exactly how to diagnose it 100% or treat it.
Have you had an ANA or antinuclear antibody test? It's a simple blood test that looks for any autoimmune disorder. If it comes up positive, it means there is some autoimmune issue but they have to do more tests to figure out which one.
also...look into lead poisoning.
Skooled wrote:
Have you had an ANA or antinuclear antibody test? It's a simple blood test that looks for any autoimmune disorder. If it comes up positive, it means there is some autoimmune issue but they have to do more tests to figure out which one.
also...look into lead poisoning.
I don't believe I have. It can really be that simple to figuring out if you have some sort of AI disease? At least that would either close another door or be a step in some direction.
Thanks for the suggestion!
Yes. an ANA test is a test to determine if you have any autoimmune disorder. I had one when i was diagnosed with hypothyroidism. If the ANA test comes out positive they do specific tests for specific autoimmune disorders (like rheumatoid arthritis). fom me they were all negative so they concluded that the hypothyroidism was due to hashimotos and that was the end of testing.
the ANA test is highly sensitive for lupus which means that a high percent of the people with lupus have a positive ANA. But it's not very specific which means that a lot of people have a positive ANA test that don't have lupus.
it's a first step.
As I stated previously, if you are in the early phase of CFS/M.E., you'll likely have a false-positive ANA. I know CFS patients who were incorrectly diagnosed w/Lupus based on this test, which later reverted.
Tell us that things are on the way up, bud. How are you?
How are ya doing, Brock Weaver?
Perhaps you may consider contacting a doctor who specializes in environmental medicine. They usually to comprehensive testing such as blood work (blood sent to a toxicology lab to test for chemicals, pesticides, etc.), saliva testing, etc. They find causes why you're ailing before any treatment is done. Most conventional doctors treat symptoms.
Here is the American Academy for Environmental Medicine. You can find a doctor in your state.
Surprised to see this back up here. Things are the same. My gastrointestinal pain is worse and I am constipated as !?@& like 99% of the time, even with laxatives. My diet is the same as it has ever been.
Whenever I do run a little bit I still have terrible achiness and soreness and general fatigue. Especially worse if I ever try to do anything fast, I get the feeling like I did when it first started; like I am about to fall apart and die.
Gotcha wrote:
How are ya doing, Brock Weaver?
Haha do you think you're some sort of super-sleuth? It didn't take much to figure out his identity, and it was pretty unnecessary and childish to put that out there. Anyways... I'm sorry to hear that you're still struggling bud. Been following this thread extensively since it started and am hoping that you find the cause of your ailment soon. Go see an endocrinologist if you haven't already.
Chronic Fatigue syndrome/ Chronic Pain disorder.
OP, curious if you ever figured out what the problem was.
Sounds like bubonic plague to me.
Goldman wrote:
OP, curious if you ever figured out what the problem was.
Lots of us curious out here, hits close to home.
Unfortunately I am still struggling pretty badly.
I am so effing tired all the time it is unreal. My legs ache from the moment when I wake up to when I go to bed. If i try to jog a little bit I typically feel like I can barely pick my feet off the ground, and usually have to stop after 10 minutes because I feel so drained and/or my legs just hurt so bad. I can't focus on a task for long, motivation is very low and I am hazy. If I get 9 hours of sleep I still can't get myself out of bed, tired all day, need a nap in the afternoon, then wake up late at night.
I have no idea what to do. Whatever it is, is not getting better. 2+ years now...
You have CFS. Have you seen a doctor who specializes in it yet? I would get a tilt table test and sleep study done. You likely have neurally-mediated hypotension or postural orthostatic tachycardia syndrome. You may have low blood volume.
There is no cure, but getting plenty of sleep and not exercising is crucial. If you can improve sleep, stress, diet, and blood volume issues in the first few years, you stand a chance. Past five years, remission is unlikely.
Some people get better by figuring out that they are sensitive to mold, finding a source nearby. The ones who achieve remission leave everything behind, including clothes and belongings, and move to a non-moldy environment. Camping and living outside for a few weeks (bringing no old stuff along) is probably the best litmus test for this.
Checking in to see how you are doing. I followed this thread for quite a while - as I also had nearly identical labs, symptoms and reactions to various changes. I am gluten free, took 4 months off entirely from running.
My pain levels have been incredibly high at times, unbearable.
In the past 2 months (After 14 months) I started taking lots of adrenal support meds - one from Gaia , one from Jarrows and a liquid droplet from Go Nutrients. I gave up on doctors helping me - I even had one prescribe T4 despite being in range - this made matters worse. I also take liquid licorice root.
I know that 90+ mile weeks, very hard training and TRT in conjunction with low calorie intake did me in. My Total T was 97 about 5 years back and I felt amazing after. I do not know what brought mine down. With the T Cyp I felt much better, the first signs were my sleep issues. I would be up all night and continue to train through. The exertion going up was the second issue.
I took many anti-dep's , most made me want to end my life, others did nothing but raise my anxiety issues.
With the above and no change in my diet I am better than I have been, and can jog easy without feeling like I am dying the next day. If i attempt to jog even the easiest 2 days in a row it is too much. I miss work to sleep far less now (as I am writing this on the couch after taking a day off. Am I an athlete any longer - definitely not, and sadly I am not sure that I will ever return. At this point I would take a better life over running. Unless you have lived with conditions like this, you cannot relate.
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